Onboarding Visit at the Food Allergy Institute: A Mother's Perspective as a Physician

The Food Allergy Institute in Long Beach is renowned for its innovative, patient-centered approach to managing severe food allergies. The institute offers a highly structured, evidence-based program designed to build tolerance to specific allergens safely over time. Families from across the country come here seeking hope and a proactive path forward, especially for children facing life-threatening food allergies. The process is intense and often requires numerous visits, testing, and gradual exposure to allergens, making it a commitment that requires patience, resilience, and dedication from both the children and their families.

This journey was what led us to the institute for our son's (Z) onboarding visit. As both a mom and a physician, I approached the day with a blend of professional curiosity and parental anxiety. Our day began in the early hours, with a drive that allowed me plenty of time to mentally prepare for the challenges we might face. We arrived to check in, joining other families waiting outside. By 8 AM, we were inside, and I completed check-in with a steep $1,400 payment. Z was then welcomed with a photo op by a "Willy Wonka" setup.

The testing began with Z's vitals and a 24-antigen skin test. To keep him still for the 15-minute waiting period, I put on Bluey and kept him comfortable, despite the itching. His resilience was impressive, especially for a 3-year-old. The doctor soon joined us to discuss our intake form and expectations for his results, although she seemed a bit rushed. The nurses then measured his reactions, applied Benadryl cream, and administered Zyrtec as a precaution.

We were given a month’s wait for the skin and blood test results, with a follow-up in two months for what they call “Launch Visits”—which will involve additional testing to guide his tolerance-building plan.

A nurse reviewed the skin test results and provided prescriptions for our next appointments, where an antihistamine will be needed daily until Z’s tolerance has improved. They also gave me an anaphylaxis action plan, which I found practical and reassuring.

Next, we went to the lab for his blood tests. After an initial attempt, we needed a second phlebotomist to complete the draws. Z struggled, understandably, as the experience became painful. After multiple attempts, he was visibly shaken, but he selected a small toy afterward, which helped lift his spirits.

On the drive home, Z quickly fell asleep, exhausted from the long morning. While challenging, this visit gave us a foundation for what lies ahead in his treatment journey.

Note: The information provided in this post is for informational purposes only and is not intended as medical advice. Always consult with a healthcare professional for personalized guidance.